ProfileHellenic Cancer Federation-ELL.O.K.
Hellenic Cancer Federation was founded in 2015 aiming to unite patients, their caregivers, healthcare professionals, cancer hospitals, politicians, the media and the public, towards the improvement of cancer care, cancer prevention, cancer survivorship, rehabilitation and reintegration of cancer patients into social life and work.
Today, the Hellenic Cancer Federation represents 27 cancer patient organisations covering all cancers from all over Greece.
Integrated, timely and affordable cancer and health care for all cancer patients, striving for excellent diagnosis, treatment, psycho-social support, rehabilitation and reintegration.
The mission of the Hellenic Cancer Federation-ELL.O.K. is to join forces with all cancer patients, volunteers and friends to advocate for the individual and collective rights of cancer patients, of their caregivers and of their family members, and for the improvement of cancer policy and care.
ELL.O.K. supports the universal access of cancer patients to public health services and aims to improve the outcomes of cancer care, to assure that all patients have access to timely cancer diagnosis, treatment, care, psycho-social rehabilitation and reintegration into social life and employment.
Cancer supportive care, care for terminally ill patients and support of the cancer patients’ families and caregivers, survivorship and rehabilitation are issues of prime importance for ELLOK.
We will achieve our objectives by:
- Inspiring, training and empowering our members
- Promoting the European Code against Cancer for a healthy lifestyle, and the European directives for regular cancer screening of the population
- Advocating for the institutionalized participation of patient representatives in cancer policy planning, in the development of the National Plan for Cancer Control in line with the European Commission’s recommendations (European Joint Actions ΕPAAC–European Partnership for Action Against Cancer and CanCon – European Guide on Quality Improvement in Comprehensive Cancer Control)
- Advocating for our seat at the policy making table, seeking representation in health and cancer related committees and bodies
- Advocating for the publication, wide dissemination and implementation of both the national and EU legislation on patients’ rights.
- Building strategic alliances and collaborations of mutual trust with all partners in the oncology community in Greece and abroad.
We believe that:
- Health is a social right.
- Cancer is best treated by talking openly, without fear, with honesty and data.
- Cancer research is the basis of treatment and collaboration among patients, doctors, caregivers, and researchers is indispensable for agreement on the priorities of research, for facing the uncertainties surrounding cancer and treatments
- The informed patient may have better outcomes
- The different voices and experiences of our patients and members are most valuable to us
- Transparency and accountability for us and our partners is essential
- Our actions should be governed by integrity and avoidance of conflict of interest
- Collective action can change the world
Board of Directors
The Board of Directors, elected in February 2017, is as follows:
Chair: Kathi Apostolidis
Deputy Chair: Eleni Deliopoulou
Secretary: George Kapetanakis
Treasurer: Paraskevi Mihalopoulou
Member: Zoe Grammatoglou
Member: Maria Theodoridou
Member: Ioanna Karavana
The Annual General Assembly is the governing body of the Hellenic Cancer Federation. It is convened once a year and the members can evaluate the actions of the organization and to set objectives for the year to come.
The General Assembly is mandated by virtue of the Statutes to decide and implement the objectives of the organization and among others, its duties are the following:
-to draw up the budget
-to approve the Financial and the Annual Report of the Board of Directors
-to validate the results of the elections and to absolve the exiting Board of Directors of all responsibility
-to validate the legal statute and the internal regulation
-to hire an external certified auditor
-to approve applications for membership
The Board of Directors is elected every 3 years and consists of 7 members, most of which are individuals with personal cancer experience. The BoD implements the decisions of the General Assembly and accounts for its actions, by putting the everyday administration of the organization in action.
The Auditing Committee comprises 3 members with a 3-year term of office. They are responsible for controlling the management of the economic assets of the organization and the drafting of the Financial report to the General Assembly.
The Hellenic Cancer Federation strives to develop powerful strategic alliances with all members of the Greek and European oncology and research communities, by building bridges of communication and collaboration with all stakeholders.
We aim at empowering and equipping our members to better support cancer patients and more actively participate in cancer policy advocacy, and make Hellenic Cancer Federation the voice of cancer patients in our country.
At the European level, the Hellenic Cancer Federation is already member of the European Cancer Patient Coalition (ECPC), and as our President is the Vice President of the European Cancer Patient Coalition-ECPC, we have good exposure and information to European cancer policy developments. ECPC is the largest European cancer patient umbrella organization, with more than 400 patient advocacy groups as members in the European Union and beyond. ECPC works for the abolishment of inequalities in cancer care in Europe and believes that the patients are the most important associates in the fight against cancer. Main goal of ECPC is the European policy about health and cancer, cancer awareness campaigns, member training and participation in research programs.
ELL.O.K. from its very first informal steps in 2011, under the acronym DE.DI.DI.KA. – Intergroup Committee for Cancer Patient Rights Advocacy, has succeeded to increase its reputation and influence by advocating on behalf of cancer patients at many fora about cancer patient rights and state of the art cancer care.
During the last seven years of the financial crisis in Greece, the declining economy, unemployment and the deregulation of labour legislation have created a new socio-economic environment of uncertainty and anxiety. In this new context, the conditions for providing cancer and in general, health care, have undergone significant change and degradation, creating new challenges for patient organisations.
To cope with these developments, cancer patient organisations decided in 2015 to legalize their so far informal collaboration, and have proceeded with the establishment of the Hellenic Cancer Federation – ELL.O.K.
We believe that if cancer patients, doctors, nurses, researchers, hospital administrators work together to foster and share knowledge, professional and individual experiences, facts, inspiration and vision, a lot of things can change.