Our Strategy

 

 

 

ELLOK’s strategy focuses on five main axes:
• Cancer and Health policies: influence the planning of cancer-related health policies

  • Monitor the national legislative process and timely intervene with the patient’s perspective
  • Organize cancer advocacy and awareness events
  • Position papers on priority issues
  • Awareness events on various cancer topics

• Cancer research: increase the involvement of cancer patients in cancer research as co-researchers

  • ELLOK aims to contribute to the shift from evidence based to value-based cancer care by providing the patients’ perspective, preferences and needs in research projects
  • ELLOK has participated in the SAB-Scientific Advisory of IASIS-Big Data for Precision Medicine project, in Cost action EU RADRESNET-Creating a European Network on Research and Education in Radiobiology, BioOnChip ERAperMED project, etc.. Our participation in research projects is still small, but our board and staff members have considerable EU funded projects experience and work towards increasing ELLOK’s participation in new Horizon Europe calls for expression of interest
  • Key research areas of interest to ELLOK are indicatively precision oncology, genomics, biomarkers, survivorship, cross border health care, socio-economic aspects of cancer, palliative and end-of-life care, mobile telephony enabled cancer supportive care (mhealth), ehealth, use of BigData and Artificial Intelligence (AI) to inform cancer diagnosis and/or treatment, interoperability, HTA-health technology assessment

• Capacity building: empower and improve the skills of our members so that they can be involved in national health policymaking and improve the services offered to their members through:

  • ELLOK Annual Congress, conferences, webinars, newsletters, white papers, patient guides
  • Working Groups focusing on different types of cancer;
  • Resources toolkit for patient organizations;

• Awareness-raising: raise awareness among society and the State about the challenges that cancer patients and their families face to ensure access to new treatments and state of the art, timely cancer care
• Governance: build a sound, transparent governance model. Strategic Partnerships with other patient advocacy groups, academia, scientific societies, research institutes, civil society strengthen our organization, enrich our knowledge, elevate the patient voice